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#260788 - 03/08/08 09:01 AM
Medical Ethics: When to end a life?
   
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Administrator
Registered: 09/01/97
Loc: CT, US
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Baby Born With Fatal Genetic Disorder -- Houston Mother Loses Fight To Keep Baby On Life Support
HOUSTON -- A critically ill baby at the center of a lengthy court battle died Tuesday shortly after being removed from life support at a Houston hosptal.
A judge in Houston on Monday lifted an injunction the mother had won that prevented doctors from halting the care they believed was futile.
Wanda Hudson unsuccessfully fought to continue the medical care for her 5-month-old son, Sun. The boy was diagnosed with a fatal genetic disorder that left him with a tiny chest and lungs that were too small to support life.
Texas Children's Hospital said it was "deeply saddened" to report that Sun Hudson died from the affects of a lethal and incurable genetic deformity.
"Texas Children's has made extraordinary efforts to provide the best possible care for Sun, as we do for all patients, and we are deeply saddened that no treatment can save this child. It would be unethical to continue with care that is futile and prolongs Sun's suffering," the hospital said in a statement Monday night. Little Baby Sun Hudson was born with a genetic deformity that made his death a painful certainty. No medical treatment, not even a heart and lung transplant could have saved the life of this child, who was born with a chest cavity too tiny to hold organs capable of sustaining his life. His mother, Wanda Hudson, was unwilling and unable to accept the clear fact that her little baby boy was going to die. She demanded that everything possible be done to keep him alive, claiming that "he just needs to grow out of it, that's all." She convinced herself that if her child was kept alive long enough, his chest would grow large enough to hold lungs that could breathe and a heart that could pump, and nothing doctors told her could persuade her otherwise. Texas law is a bit unique in that it allows hospitals to make the choice to end life support in cases such as Baby Sun's, but requires that families be given 10 days to find another facility to care for the patient. No other hospital could be located to take the doomed baby. The Texas Children's Ethics Committee reviewed Sun's case before recommending that life support be discontinued. This is a landmark case in Texas, being the first in which doctors and hospital have had to overrule the wishes of a patient's family. The concensus among Baby Sun's doctors, the hospital, and the ethics committee was that this baby was in the process of actively dying, and that the process of this death was cruelly painful to the baby, and that there was absolutely no hope for a treatment or a cure, the life-support equipment was doing nothing but prolonging the baby's painful death, rather than "supporting life". They used their option to withdraw life support for the sake of the child, whom they felt was being caused to suffer needlessly because of the vain hopes of his mother for a miracle. Wanda Hudson is calling the lot of them "murderers", and taking her case to court. She is demanding an autopsy and genetic testing to attempt to disprove that her baby had any genetic disease at all. The main thrust of her case consists of her strong belief that if her baby had been kept on life support for another few months, or a year, he would have "grown out of it" and become a normal little boy. Aside from this malpractice case, Wanda Hudson named her child "Sun" because she says he was conceived magically by the celestial body we call the Sun while she was all alone one day, looking up at the sky. Do you agree with Wanda that her Baby Sun was murdered by heartless doctors and officials? Or do you feel that the sad decision to withdraw Sun's life support and end his futile suffering was the best and most merciful choice that could have been made for him? Please take a second to click on our poll and record your opinion.
_________________________
Helice
Nemo me impune lacesset. ~~~~~~~~~~~~~~~~
"Of all the tyrannies that affect mankind, tyranny in religion is the worst; every other species of tyranny is limited to the world we live in; but this attempts to stride beyond the grave, and seeks to pursue us into eternity."
-- Thomas Paine
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#260874 - 03/08/08 10:00 PM
Re: Medical Ethics: When to end a life?
[Re: Ray]
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Administrator
Registered: 09/01/97
Loc: CT, US
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Ray, I didn't create this as a political discussion; rather to explore people's understanding of medical ethics and to see how everyone feels about such a sensitive subject as ending an infant's life. I don't wish to relate this discussion to partisan politics, rather to individual feelings and understandings of what the ethical problem consists of and the least reprehensible way of solving the problem, since in ethical dilemmas there is rarely a clearly "right" or "wrong" answer.
I also concurred with the hospital's decision to remove life support from the baby, seeing it as only a miserable prolongation of the inevitable death to come rather than actual support of life functions.
Just because medical technology has given us the ability to extend life a wee little bit longer in some cases, does that mean we must always employ that life-extending technology? When is it "wrong" to prolong life? When is it "right" to shorten it?
By denying life support to an infant with an inevitably fatal, painful condition with the intent of mercy, are we blurring the line between ethically sparing the patient unnecessary pain and euthanasia?
In the end, after fully exploring the ethics of offering and withholding life support, I hope to explore and contrast people's feelings about this affair with the concept and ethics of euthanasia and/or physician-assisted suicide.
_________________________
Helice
Nemo me impune lacesset. ~~~~~~~~~~~~~~~~
"Of all the tyrannies that affect mankind, tyranny in religion is the worst; every other species of tyranny is limited to the world we live in; but this attempts to stride beyond the grave, and seeks to pursue us into eternity."
-- Thomas Paine
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#260879 - 03/08/08 11:27 PM
Re: Medical Ethics: When to end a life?
[Re: Helice]
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TM Chairman of the Board
Registered: 09/22/00
Loc: Arkansas, USA
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Aw now. Don't worry, Helice. I'm not going to start a political discussion. I was just poking a little fun at some folks.
However, the short of it is that one ethics question can often be closely related to another. And I really do recognize there are shades of gray. For instance, in four short statements I can say: 1) I believe abortion should be, as a president said, "available but rare." 2) I believe capital punishment should, likewise, be available but used sparingly. 3) I believe terminally ill people should have the right to terminate an unbearable existance. 4) I am against "euthanasia."
This story brings up a problem that the United States has in that our "infant mortality rate" looks poor against some other countries. However, because of our advances in medical science our hospitals often try to save newborns that in other countries would be allowed to be stillborn. A still born infant can't "die" because technically it was never alive. Conversely, American hospitals will often go to heroic effort to save such an infant. When such efforts are unsuccessful, the resulting "death" is figured into the mortality rate.
Now, this takes us back to my 4 statements. Does this story of this particular infant properly fall under my personal "Euthanasia" rule? Or could it be considered an available but rare "Abortion" but merely after the fact?
Since I voted in favor of the hospital's action it's safe to conclude I'm looking at this as a case where this infant should never have been allowed to be "born" after the moment doctors understood it could never, ever survive despite the greatest of available heroic actions.
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